Rare Diseases: AOP Health highlights information and collaboration

Between 27 and 36 million people in Europe live with a rare disease and only about six percent have access to an approved treatment; AOP Health, marking Rare Disease Day 2026, emphasizes the need for clearer patient information, data sharing and cross‑community collaboration.

AOP Health noted the persistent gaps in diagnosis and treatment for people with rare diseases and called for closer cooperation across the healthcare community. The company referenced its 30 years of work in developing therapies and highlighted the role of usable, patient-friendly information. On Rare Disease Day 2026, AOP Health joined healthcare professionals, researchers and patient representatives in stressing better use of scarce data. The statement focused on collaboration, data investment and making information accessible to patients. Key facts: - Between 27 and 36 million people in Europe are reported to live with a rare disease. - Around six percent of those patients are reported to have access to an approved treatment. - Progress in diagnosis and treatment is reported to be slowed by knowledge gaps and a lack of clear, patient-friendly information. - AOP Health cites around 30 years of experience working on rare disease research and therapy development since 1996. - On Rare Disease Day 2026 the company joined other stakeholders in calling for more cooperation to generate, share and better use scarce data. Summary: AOP Health says limited treatment access and gaps in usable information hamper progress for people with rare diseases and is urging coordinated efforts to improve data and information sharing. Undetermined at this time.